In general, carers felt they could be valued more, listened to more, and have their experiences and knowledge taken into consideration. There was an overall feeling of exhaustion with little or no down-time amongst carers.
This research was carried out during the COVID-19 pandemic, which exacerbated the experiences of many carers. We engaged with unpaid carers through focus groups and structured telephone interviews to give them an opportunity about what changes or improvements they would like to see over the next four years.
Everyone we heard from pointed out that many services are not joined up and information is often duplicated. All carers also expressed concern over their financial situation, with many using savings to top up funding for extra care and respite services.
You can download our full report below.